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Final Conference of the European Project BUR-EB in Santa Cruz de Tenerife

On October 7th, 2025, the final conference of the European project BUR-EB took place in Santa Cruz de Tenerife. The project, coordinated by FIISC and funded by the Horizonte 2020 programme, brought together researchers from seven countries and representatives from DEBRA Piel de Mariposa associations to present the results on the socioeconomic impact, quality of life, and educational materials for people living with Epidermolysis Bullosa and their caregivers.

The BUR-EB project has validated new tools to measure the burden of the disease and highlighted the importance of collaboration between science and patients in rare disease research.

More information 👉 www.bur-eb.com